Know & Grow: Education - self-management - empowerment for children and young people with rare chronic metabolic diseases
Brief description
Know & Grow is a cooperation project between Charit茅-Universit盲tsmedizin Berlin and 麻豆传媒映画 of Applied Sciences Heidelberg, Campus Berlin, which has been running since the beginning of 2022. The aim of the project is to develop information and educational material for children and young people with rare chronic metabolic diseases and their families. As metabolic diseases are extremely rare, there is very little educational material suitable for children that clearly explains the disease and illustrates the necessary therapeutic measures. As a result, parents have so far been left to their own devices and their own understanding of the disease to educate their children and explain the disease and its consequences to them.
The information and educational material developed by Know & Grow is intended to help affected children to deal with the metabolic disease in an age-appropriate manner from the outset and over the years in line with their development. It is being developed as a model project in Berlin and will benefit children from Berlin who are cared for at the Outpatient Clinic for Metabolic Diseases of the Children's Clinic with a focus on Gastroenterology, Nephrology and Metabolic Diseases and the Social Pediatric Center of the Charit茅 Berlin. The results will later be made available to hospitals and institutions throughout Germany and internationally in English.
The project is being implemented by the 麻豆传媒映画 of Applied Sciences Heidelberg, Campus Berlin and the Charit茅-Universit盲tsmedizin Berlin, Social Pediatric Center (SPZ) for chronically ill children. The project is supported by 鈥淢ilupa/Nutricia Metabolics鈥�, the Berlin 鈥淪parkassenstiftung Medizin鈥� and 鈥淏ILD hilft e.V. 鈥滶in Herz f眉r Kinder"
Project duration: 04/2025 - 09/2026
Language: German
Funding provider: BILD hilft e.V. 鈥淓in Herz f眉r Kinder鈥�
Funding volume: 鈧� 105,208.00
Cooperation partners:
More information on the "Know & Grow" project can be found here:
